Patient Perspective on Acute Intermittent Porphyria with Frequent Attacks: A Disease with Intermittent and Chronic Manifestations

OBJECTIVE: Acute intermittent porphyria is a rare metabolic disorder that affects heme synthesis. Patients with acute intermittent porphyria may experience acute debilitating neurovisceral attacks that require frequent hospitalizations and negatively impact quality of life. Although clinical aspects...

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Bibliografiske detaljer
Udgivet i:Patient
Main Authors: Simon, Amy, Pompilus, Farrah, Querbes, William, Wei, Alex, Strzok, Sara, Penz, Craig, Howe, Desiree Lyon, Hungate, Jessica R., Kim, Jae B., Agarwal, Sonalee, Marquis, Patrick
Format: Artigo
Sprog:Inglês
Udgivet: Springer International Publishing 2018
Fag:
Original Research Article
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC6132435/
https://ncbi.nlm.nih.gov/pubmed/29915990
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s40271-018-0319-3
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