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The humanistic burden of Pompe disease: are there still unmet needs? A systematic review
BACKGROUND: Humanistic burden considers the impact of an illness on a patient’s health-related quality of life (HRQoL), activities of daily living (ADL), caregiver health, and caregiver QoL. Humanistic burden also considers treatment satisfaction and adherence to treatment regimens. Pompe disease is...
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| 出版年: | BMC Neurol |
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| 主要な著者: | , , , , , |
| フォーマット: | Artigo |
| 言語: | Inglês |
| 出版事項: |
BioMed Central
2017
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| 主題: | |
| オンライン･アクセス: | https://ncbi.nlm.nih.gov/pmc/articles/PMC5700516/ https://ncbi.nlm.nih.gov/pubmed/29166883 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12883-017-0983-2 |
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