The humanistic burden of Pompe disease: are there still unmet needs? A systematic review

BACKGROUND: Humanistic burden considers the impact of an illness on a patient’s health-related quality of life (HRQoL), activities of daily living (ADL), caregiver health, and caregiver QoL. Humanistic burden also considers treatment satisfaction and adherence to treatment regimens. Pompe disease is...

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Detaylı Bibliyografya
Yayımlandı:BMC Neurol
Asıl Yazarlar: Schoser, Benedikt, Bilder, Deborah A., Dimmock, David, Gupta, Digant, James, Emma S., Prasad, Suyash
Materyal Türü: Artigo
Dil:Inglês
Baskı/Yayın Bilgisi: BioMed Central 2017
Konular:
Research Article
Online Erişim:https://ncbi.nlm.nih.gov/pmc/articles/PMC5700516/
https://ncbi.nlm.nih.gov/pubmed/29166883
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12883-017-0983-2
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