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The humanistic burden of Pompe disease: are there still unmet needs? A systematic review
Abstract Background Humanistic burden considers the impact of an illness on a patient’s health-related quality of life (HRQoL), activities of daily living (ADL), caregiver health, and caregiver QoL. Humanistic burden also considers treatment satisfaction and adherence to treatment regimens. Pompe di...
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| Main Authors: | , , , , , |
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| Formato: | Artigo |
| Idioma: | Inglês |
| Publicado em: |
BMC
2017-11-01
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| Colecção: | BMC Neurology |
| Assuntos: | |
| Acesso em linha: | http://link.springer.com/article/10.1186/s12883-017-0983-2 |
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