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The RUDY study: using digital technologies to enable a research partnership

Patients have extensive experience of their disease that can enhance the design and execution of research leading to significant innovations and efficiencies in the research process. The research community on the whole have been slow to adopt practices that enable patients to become active partners...

Täydet tiedot

Tallennettuna:
Bibliografiset tiedot
Julkaisussa:Eur J Hum Genet
Päätekijät: Teare, Harriet J A, Hogg, Joanna, Kaye, Jane, Luqmani, Raashid, Rush, Elaine, Turner, Alison, Watts, Laura, Williams, Melanie, Javaid, M Kassim
Aineistotyyppi: Artigo
Kieli:Inglês
Julkaistu: Nature Publishing Group 2017
Aiheet:
Linkit:https://ncbi.nlm.nih.gov/pmc/articles/PMC5520069/
https://ncbi.nlm.nih.gov/pubmed/28443622
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/ejhg.2017.57
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