Health-related quality of life and a cost-utility simulation of adults in the UK with osteogenesis imperfecta, X-linked hypophosphatemia and fibrous dysplasia

BACKGROUND: Health-related quality of life of adults with osteogenesis imperfecta (OI), fibrous dysplasia (FD) and X-linked hypophosphatemia (XLH) remains poorly described. The aim of this study was to describe the HRQoL of adults with osteogenesis imperfecta, fibrous dysplasia and X-linked hypophop...

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Shranjeno v:
Bibliografske podrobnosti
izdano v:Orphanet J Rare Dis
Main Authors: Forestier-Zhang, Lydia, Watts, Laura, Turner, Alison, Teare, Harriet, Kaye, Jane, Barrett, Joe, Cooper, Cyrus, Eastell, Richard, Wordsworth, Paul, Javaid, Muhammad K., Pinedo-Villanueva, Rafael
Format: Artigo
Jezik:Inglês
Izdano: BioMed Central 2016
Teme:
Research
Online dostop:https://ncbi.nlm.nih.gov/pmc/articles/PMC5126812/
https://ncbi.nlm.nih.gov/pubmed/27894323
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-016-0538-4
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