The RUDY study: using digital technologies to enable a research partnership

Patients have extensive experience of their disease that can enhance the design and execution of research leading to significant innovations and efficiencies in the research process. The research community on the whole have been slow to adopt practices that enable patients to become active partners...

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Detalhes bibliográficos
Publicado no:Eur J Hum Genet
Main Authors: Teare, Harriet J A, Hogg, Joanna, Kaye, Jane, Luqmani, Raashid, Rush, Elaine, Turner, Alison, Watts, Laura, Williams, Melanie, Javaid, M Kassim
Formato: Artigo
Idioma:Inglês
Publicado em: Nature Publishing Group 2017
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Article
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC5520069/
https://ncbi.nlm.nih.gov/pubmed/28443622
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/ejhg.2017.57
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