Characterization and utilization of an international neurofibromatosis web-based, patient–entered registry: An observational study

The neurofibromatoses (neurofibromatosis type 1, neurofibromatosis type 2 and schwannomatosis) are rare disorders having clinical manifestations that vary greatly from patient to patient. The rarity and variability of these disorders has made it challenging for investigators to identify sufficient n...

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Dettagli Bibliografici
Pubblicato in:PLoS One
Autori principali: Seidlin, Mindell, Holzman, Robert, Knight, Pamela, Korf, Bruce, Rangel Miller, Vanessa, Viskochil, David, Bakker, Annette
Natura: Artigo
Lingua:Inglês
Pubblicazione: Public Library of Science 2017
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Research Article
Accesso online:https://ncbi.nlm.nih.gov/pmc/articles/PMC5482445/
https://ncbi.nlm.nih.gov/pubmed/28644838
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1371/journal.pone.0178639
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