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The impact of the COVID-19 pandemic on neurofibromatosis clinical care and research

PURPOSE: The coronavirus disease 2019 (COVID-19) pandemic has had unprecedented impact on the provision of medical care for genetic disorders. The purpose of this study was to assess the effects of the pandemic on neurofibromatosis (NF) care and research. METHODS: Sixty-three United States NF clinic...

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Detalhes bibliográficos
Publicado no:Orphanet J Rare Dis
Main Authors: Radtke, Heather B., Klein-Tasman, Bonita P., Merker, Vanessa L., Knight, Pamela, Ullrich, Nicole J., Jordan, Justin T., Korf, Bruce, Plotkin, Scott R.
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2021
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Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC7848872/
https://ncbi.nlm.nih.gov/pubmed/33522938
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-021-01711-w
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