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The impact of the COVID-19 pandemic on neurofibromatosis clinical care and research

PURPOSE: The coronavirus disease 2019 (COVID-19) pandemic has had unprecedented impact on the provision of medical care for genetic disorders. The purpose of this study was to assess the effects of the pandemic on neurofibromatosis (NF) care and research. METHODS: Sixty-three United States NF clinic...

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Pubblicato in:Orphanet J Rare Dis
Autori principali: Radtke, Heather B., Klein-Tasman, Bonita P., Merker, Vanessa L., Knight, Pamela, Ullrich, Nicole J., Jordan, Justin T., Korf, Bruce, Plotkin, Scott R.
Natura: Artigo
Lingua:Inglês
Pubblicazione: BioMed Central 2021
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Accesso online:https://ncbi.nlm.nih.gov/pmc/articles/PMC7848872/
https://ncbi.nlm.nih.gov/pubmed/33522938
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-021-01711-w
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