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Who should have access to genomic data and how should they be held accountable? Perspectives of Data Access Committee members and experts

Facilitating the responsible access to genomic research data is an emerging ethical and scientific imperative. Data Access Committees (DACs) assess the ethical footing and scientific feasibility of the data access requests and evaluate the qualification of applicants to ensure they are bona fide res...

詳細記述

保存先:
書誌詳細
出版年:Eur J Hum Genet
主要な著者: Shabani, Mahsa, Thorogood, Adrian, Borry, Pascal
フォーマット: Artigo
言語:Inglês
出版事項: Nature Publishing Group 2016
主題:
オンライン・アクセス:https://ncbi.nlm.nih.gov/pmc/articles/PMC5117916/
https://ncbi.nlm.nih.gov/pubmed/27552966
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/ejhg.2016.111
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