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Who should have access to genomic data and how should they be held accountable? Perspectives of Data Access Committee members and experts

Facilitating the responsible access to genomic research data is an emerging ethical and scientific imperative. Data Access Committees (DACs) assess the ethical footing and scientific feasibility of the data access requests and evaluate the qualification of applicants to ensure they are bona fide res...

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Pubblicato in:Eur J Hum Genet
Autori principali: Shabani, Mahsa, Thorogood, Adrian, Borry, Pascal
Natura: Artigo
Lingua:Inglês
Pubblicazione: Nature Publishing Group 2016
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Accesso online:https://ncbi.nlm.nih.gov/pmc/articles/PMC5117916/
https://ncbi.nlm.nih.gov/pubmed/27552966
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/ejhg.2016.111
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