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Who should have access to genomic data and how should they be held accountable? Perspectives of Data Access Committee members and experts

Facilitating the responsible access to genomic research data is an emerging ethical and scientific imperative. Data Access Committees (DACs) assess the ethical footing and scientific feasibility of the data access requests and evaluate the qualification of applicants to ensure they are bona fide res...

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Detalhes bibliográficos
Publicado no:Eur J Hum Genet
Main Authors: Shabani, Mahsa, Thorogood, Adrian, Borry, Pascal
Formato: Artigo
Idioma:Inglês
Publicado em: Nature Publishing Group 2016
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC5117916/
https://ncbi.nlm.nih.gov/pubmed/27552966
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/ejhg.2016.111
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