Coming of age of personalized medicine: challenges ahead

por Borry, Pascal
Publicado 2009

Challenges of web-based personal genomic data sharing

por Shabani, Mahsa, Borry, Pascal
Publicado en Life Sci Soc Policy (2015)

Rules for processing genetic data for research purposes in view of the new EU General Data Protection Regulation

por Shabani, Mahsa, Borry, Pascal
Publicado en Eur J Hum Genet (2017)

Is there a doctor in the house?: The presence of physicians in the direct-to-consumer genetic testing context

por Howard, Heidi Carmen, Borry, Pascal
Publicado 2011

To ban or not to ban?: Clinical geneticists' views on the regulation of direct-to-consumer genetic testing

por Howard, Heidi Carmen, Borry, Pascal
Publicado 2012

To ban or not to ban?: Clinical geneticists' views on the regulation of direct-to-consumer genetic testing

por Howard, Heidi Carmen, Borry, Pascal
Publicado 2012

Survey of European clinical geneticists on awareness, experiences and attitudes towards direct-to-consumer genetic testing

por Howard, Heidi Carmen, Borry, Pascal
Publicado 2013

How international is bioethics? A quantitative retrospective study

por Borry, Pascal, Schotsmans, Paul, Dierickx, Kris
Publicado 2006

Who should have access to genomic data and how should they be held accountable? Perspectives of Data Access Committee members and experts

por Shabani, Mahsa, Thorogood, Adrian, Borry, Pascal
Publicado en Eur J Hum Genet (2016)

Third party interpretation of raw genetic data: an ethical exploration

por Badalato, Lauren, Kalokairinou, Louiza, Borry, Pascal
Publicado en Eur J Hum Genet (2017)

Data sharing platforms and the academic evaluation system

por Devriendt, Thijs, Shabani, Mahsa, Borry, Pascal
Publicado en EMBO Rep (2020)

Factors that influence data sharing through data sharing platforms: A qualitative study on the views and experiences of cohort holders and platform developers

por Devriendt, Thijs, Borry, Pascal, Shabani, Mahsa
Publicado en PLoS One (2021)

Users’ motivations to purchase direct-to-consumer genome-wide testing: an exploratory study of personal stories

por Su, Yeyang, Howard, Heidi C., Borry, Pascal
Publicado 2011

Are the kids really all right? Direct-to-consumer genetic testing in children: are company policies clashing with professional norms?

por Howard, Heidi Carmen, Avard, Denise, Borry, Pascal
Publicado 2011

From the principles of genomic data sharing to the practices of data access committees

por Shabani, Mahsa, Knoppers, Bartha Maria, Borry, Pascal
Publicado en EMBO Mol Med (2015)

Blurring lines

por Howard, Heidi C, Knoppers, Bartha Maria, Borry, Pascal
Publicado 2010

Where are you going, where have you been: a recent history of the direct-to-consumer genetic testing market

por Borry, Pascal, Cornel, Martina C., Howard, Heidi C.
Publicado 2010

“You hoped we would sleep walk into accepting the collection of our data”: controversies surrounding the UK care.data scheme and their wider relevance for biomedical research

por Sterckx, Sigrid, Rakic, Vojin, Cockbain, Julian, Borry, Pascal
Publicado en Med Health Care Philos (2015)

The challenge of implementing genetic tests with clinical utility while avoiding unsound applications

por Cornel, Martina C., van El, Carla G., Borry, Pascal
Publicado 2012

The author who wasn’t there? Fairness and attribution in publications following access to population biobanks

por Kleiderman, Erika, Pack, Amy, Borry, Pascal, Zawati, Ma’n
Publicado en PLoS One (2018)