Adopting Quality Criteria for Websites Providing Medical Information About Rare Diseases

BACKGROUND: The European Union considers diseases to be rare when they affect less than 5 in 10,000 people. It is estimated that there are between 5000 and 8000 different rare diseases. Consistent with this diversity, the quality of information available on the Web varies considerably. Thus, quality...

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Dades bibliogràfiques
Publicat a:Interact J Med Res
Autors principals: Pauer, Frédéric, Göbel, Jens, Storf, Holger, Litzkendorf, Svenja, Babac, Ana, Frank, Martin, Lührs, Verena, Schauer, Franziska, Schmidtke, Jörg, Biehl, Lisa, Wagner, Thomas OF, Ückert, Frank, Graf von der Schulenburg, Johann-Matthias, Hartz, Tobias
Format: Artigo
Idioma:Inglês
Publicat: JMIR Publications 2016
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Original Paper
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC5016623/
https://ncbi.nlm.nih.gov/pubmed/27562540
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.2196/ijmr.5822
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