Rare Diseases on the Internet: An Assessment of the Quality of Online Information

Por Pauer, Frédéric, Litzkendorf, Svenja, Göbel, Jens, Storf, Holger, Zeidler, Jan, Graf von der Schulenburg, Johann-Matthias
Publicado no J Med Internet Res (2017)

Shaping an Effective Health Information Website on Rare Diseases Using a Group Decision-Making Tool: Inclusion of the Perspectives of Patients, Their Family Members, and Physicians

Por Babac, Ana, Litzkendorf, Svenja, Schmidt, Katharina, Pauer, Frédéric, Damm, Kathrin, Frank, Martin, Graf von der Schulenburg, Johann-Matthias
Publicado no Interact J Med Res (2017)

Telephone health services in the field of rare diseases: a qualitative interview study examining the needs of patients, relatives, and health care professionals in Germany

Por Babac, Ana, Frank, Martin, Pauer, Frédéric, Litzkendorf, Svenja, Rosenfeldt, Daniel, Lührs, Verena, Biehl, Lisa, Hartz, Tobias, Storf, Holger, Schauer, Franziska, Wagner, Thomas O. F., Graf von der Schulenburg, J-Matthias
Publicado no BMC Health Serv Res (2018)

Adopting Quality Criteria for Websites Providing Medical Information About Rare Diseases

Por Pauer, Frédéric, Göbel, Jens, Storf, Holger, Litzkendorf, Svenja, Babac, Ana, Frank, Martin, Lührs, Verena, Schauer, Franziska, Schmidtke, Jörg, Biehl, Lisa, Wagner, Thomas OF, Ückert, Frank, Graf von der Schulenburg, Johann-Matthias, Hartz, Tobias
Publicado no Interact J Med Res (2016)

Conceptualization and Implementation of the Central Information Portal on Rare Diseases: Protocol for a Qualitative Study

Por Litzkendorf, Svenja, Hartz, Tobias, Göbel, Jens, Storf, Holger, Pauer, Frédéric, Babac, Ana, Lührs, Verena, Bruckner-Tuderman, Leena, Schauer, Franziska, Schmidtke, Jörg, Biehl, Lisa, Wagner, TOF, Graf von der Schulenburg, J-Matthias, Frank, Martin
Publicado no JMIR Res Protoc (2018)