Adopting Quality Criteria for Websites Providing Medical Information About Rare Diseases

BACKGROUND: The European Union considers diseases to be rare when they affect less than 5 in 10,000 people. It is estimated that there are between 5000 and 8000 different rare diseases. Consistent with this diversity, the quality of information available on the Web varies considerably. Thus, quality...

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Detalhes bibliográficos
Publicado no:Interact J Med Res
Main Authors: Pauer, Frédéric, Göbel, Jens, Storf, Holger, Litzkendorf, Svenja, Babac, Ana, Frank, Martin, Lührs, Verena, Schauer, Franziska, Schmidtke, Jörg, Biehl, Lisa, Wagner, Thomas OF, Ückert, Frank, Graf von der Schulenburg, Johann-Matthias, Hartz, Tobias
Formato: Artigo
Idioma:Inglês
Publicado em: JMIR Publications 2016
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Original Paper
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC5016623/
https://ncbi.nlm.nih.gov/pubmed/27562540
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.2196/ijmr.5822
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