Adopting Quality Criteria for Websites Providing Medical Information About Rare Diseases

BACKGROUND: The European Union considers diseases to be rare when they affect less than 5 in 10,000 people. It is estimated that there are between 5000 and 8000 different rare diseases. Consistent with this diversity, the quality of information available on the Web varies considerably. Thus, quality...

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Shranjeno v:
Bibliografske podrobnosti
izdano v:Interact J Med Res
Main Authors: Pauer, Frédéric, Göbel, Jens, Storf, Holger, Litzkendorf, Svenja, Babac, Ana, Frank, Martin, Lührs, Verena, Schauer, Franziska, Schmidtke, Jörg, Biehl, Lisa, Wagner, Thomas OF, Ückert, Frank, Graf von der Schulenburg, Johann-Matthias, Hartz, Tobias
Format: Artigo
Jezik:Inglês
Izdano: JMIR Publications 2016
Teme:
Original Paper
Online dostop:https://ncbi.nlm.nih.gov/pmc/articles/PMC5016623/
https://ncbi.nlm.nih.gov/pubmed/27562540
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.2196/ijmr.5822
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