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Adopting Quality Criteria for Websites Providing Medical Information About Rare Diseases

BACKGROUND: The European Union considers diseases to be rare when they affect less than 5 in 10,000 people. It is estimated that there are between 5000 and 8000 different rare diseases. Consistent with this diversity, the quality of information available on the Web varies considerably. Thus, quality...

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Podrobná bibliografie
Vydáno v:Interact J Med Res
Hlavní autoři: Pauer, Frédéric, Göbel, Jens, Storf, Holger, Litzkendorf, Svenja, Babac, Ana, Frank, Martin, Lührs, Verena, Schauer, Franziska, Schmidtke, Jörg, Biehl, Lisa, Wagner, Thomas OF, Ückert, Frank, Graf von der Schulenburg, Johann-Matthias, Hartz, Tobias
Médium: Artigo
Jazyk:Inglês
Vydáno: JMIR Publications 2016
Témata:
On-line přístup:https://ncbi.nlm.nih.gov/pmc/articles/PMC5016623/
https://ncbi.nlm.nih.gov/pubmed/27562540
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.2196/ijmr.5822
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