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Participants’ recall and understanding of genomic research and large-scale data sharing

As genomic researchers are urged to openly share generated sequence data with other researchers, it is important to examine the utility of informed consent documents and processes, particularly as these relate to participants’ engagement with and recall of the information presented to them, their ob...

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Detalhes bibliográficos
Main Authors: Robinson, Jill Oliver, Slashinski, Melody J., Wang, Tao, Hilsenbeck, Susan G., McGuire, Amy L.
Formato: Artigo
Idioma:Inglês
Publicado em: 2013
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC3995160/
https://ncbi.nlm.nih.gov/pubmed/24169421
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1525/jer.2013.8.4.42
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