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Pediatric Data Sharing in Genomic Research: Attitudes and Preferences of Parents

OBJECTIVE: In the United States, data from federally funded genomics studies are stored in national databases, which may be accessible to anyone online (public release) or only to qualified researchers (restricted release). The availability of such data exposes participants to privacy risk and limit...

詳細記述

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書誌詳細
主要な著者: Burstein, Matthew D., Robinson, Jill Oliver, Hilsenbeck, Susan G., McGuire, Amy L., Lau, Ching C.
フォーマット: Artigo
言語:Inglês
出版事項: American Academy of Pediatrics 2014
主題:
オンライン・アクセス:https://ncbi.nlm.nih.gov/pmc/articles/PMC3966500/
https://ncbi.nlm.nih.gov/pubmed/24616359
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1542/peds.2013-1592
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