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Pediatric Data Sharing in Genomic Research: Attitudes and Preferences of Parents
OBJECTIVE: In the United States, data from federally funded genomics studies are stored in national databases, which may be accessible to anyone online (public release) or only to qualified researchers (restricted release). The availability of such data exposes participants to privacy risk and limit...
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| Main Authors: | , , , , |
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| Formato: | Artigo |
| Idioma: | Inglês |
| Publicado em: |
American Academy of Pediatrics
2014
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| Assuntos: | |
| Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC3966500/ https://ncbi.nlm.nih.gov/pubmed/24616359 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1542/peds.2013-1592 |
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