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Participants’ recall and understanding of genomic research and large-scale data sharing

As genomic researchers are urged to openly share generated sequence data with other researchers, it is important to examine the utility of informed consent documents and processes, particularly as these relate to participants’ engagement with and recall of the information presented to them, their ob...

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Hlavní autoři: Robinson, Jill Oliver, Slashinski, Melody J., Wang, Tao, Hilsenbeck, Susan G., McGuire, Amy L.
Médium: Artigo
Jazyk:Inglês
Vydáno: 2013
Témata:
On-line přístup:https://ncbi.nlm.nih.gov/pmc/articles/PMC3995160/
https://ncbi.nlm.nih.gov/pubmed/24169421
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1525/jer.2013.8.4.42
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