To Share or Not to Share: A Randomized Trial of Consent for Data Sharing in Genome Research

PURPOSE: Despite growing concerns toward maintaining participants’ privacy, individual investigators collecting tissue and other biological specimens for genomic analysis are encouraged to obtain informed consent for broad data sharing. To assess the effect on research enrollment and data sharing de...

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Detalhes bibliográficos
Main Authors: McGuire, Amy L., Oliver, Jill M., Slashinski, Melody J., Graves, Jennifer L., Wang, Tao, Kelly, P. Adam, Fisher, William, Lau, Ching C., Goss, John, Okcu, Mehmet, Treadwell-Deering, Diane, Goldman, Alica M., Noebels, Jeffrey L., Hilsenbeck, Susan G.
Formato: Artigo
Idioma:Inglês
Publicado em: 2011
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Article
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC3203320/
https://ncbi.nlm.nih.gov/pubmed/21785360
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1097/GIM.0b013e3182227589
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