To Share or Not to Share: A Randomized Trial of Consent for Data Sharing in Genome Research

PURPOSE: Despite growing concerns toward maintaining participants’ privacy, individual investigators collecting tissue and other biological specimens for genomic analysis are encouraged to obtain informed consent for broad data sharing. To assess the effect on research enrollment and data sharing de...

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Detaylı Bibliyografya
Asıl Yazarlar: McGuire, Amy L., Oliver, Jill M., Slashinski, Melody J., Graves, Jennifer L., Wang, Tao, Kelly, P. Adam, Fisher, William, Lau, Ching C., Goss, John, Okcu, Mehmet, Treadwell-Deering, Diane, Goldman, Alica M., Noebels, Jeffrey L., Hilsenbeck, Susan G.
Materyal Türü: Artigo
Dil:Inglês
Baskı/Yayın Bilgisi: 2011
Konular:
Article
Online Erişim:https://ncbi.nlm.nih.gov/pmc/articles/PMC3203320/
https://ncbi.nlm.nih.gov/pubmed/21785360
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1097/GIM.0b013e3182227589
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