Harvard Personal Genome Project: lessons from participatory public research

BACKGROUND: Since its initiation in 2005, the Harvard Personal Genome Project has enrolled thousands of volunteers interested in publicly sharing their genome, health and trait data. Because these data are highly identifiable, we use an ‘open consent’ framework that purposefully excludes promises ab...

Celý popis

Uloženo v:
Podrobná bibliografie
Hlavní autoři: Ball, Madeleine P, Bobe, Jason R, Chou, Michael F, Clegg, Tom, Estep, Preston W, Lunshof, Jeantine E, Vandewege, Ward, Zaranek, Alexander Wait, Church, George M
Médium: Artigo
Jazyk:Inglês
Vydáno: BioMed Central 2014
Témata:
Open Debate
On-line přístup:https://ncbi.nlm.nih.gov/pmc/articles/PMC3978420/
https://ncbi.nlm.nih.gov/pubmed/24713084
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/gm527
Tagy: Přidat tag
Žádné tagy, Buďte první, kdo otaguje tento záznam!

Podobné jednotky