Harvard Personal Genome Project: lessons from participatory public research

BACKGROUND: Since its initiation in 2005, the Harvard Personal Genome Project has enrolled thousands of volunteers interested in publicly sharing their genome, health and trait data. Because these data are highly identifiable, we use an ‘open consent’ framework that purposefully excludes promises ab...

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Detalhes bibliográficos
Main Authors: Ball, Madeleine P, Bobe, Jason R, Chou, Michael F, Clegg, Tom, Estep, Preston W, Lunshof, Jeantine E, Vandewege, Ward, Zaranek, Alexander Wait, Church, George M
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2014
Assuntos:
Open Debate
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC3978420/
https://ncbi.nlm.nih.gov/pubmed/24713084
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/gm527
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