Harvard Personal Genome Project: lessons from participatory public research

BACKGROUND: Since its initiation in 2005, the Harvard Personal Genome Project has enrolled thousands of volunteers interested in publicly sharing their genome, health and trait data. Because these data are highly identifiable, we use an ‘open consent’ framework that purposefully excludes promises ab...

Full beskrivning

Sparad:
Bibliografiska uppgifter
Huvudupphovsmän: Ball, Madeleine P, Bobe, Jason R, Chou, Michael F, Clegg, Tom, Estep, Preston W, Lunshof, Jeantine E, Vandewege, Ward, Zaranek, Alexander Wait, Church, George M
Materialtyp: Artigo
Språk:Inglês
Publicerad: BioMed Central 2014
Ämnen:
Open Debate
Länkar:https://ncbi.nlm.nih.gov/pmc/articles/PMC3978420/
https://ncbi.nlm.nih.gov/pubmed/24713084
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/gm527
Taggar: Lägg till en tagg
Inga taggar, Lägg till första taggen!

Liknande verk