Harvard Personal Genome Project: lessons from participatory public research

BACKGROUND: Since its initiation in 2005, the Harvard Personal Genome Project has enrolled thousands of volunteers interested in publicly sharing their genome, health and trait data. Because these data are highly identifiable, we use an ‘open consent’ framework that purposefully excludes promises ab...

पूर्ण विवरण

में बचाया:
ग्रंथसूची विवरण
मुख्य लेखकों: Ball, Madeleine P, Bobe, Jason R, Chou, Michael F, Clegg, Tom, Estep, Preston W, Lunshof, Jeantine E, Vandewege, Ward, Zaranek, Alexander Wait, Church, George M
स्वरूप: Artigo
भाषा:Inglês
प्रकाशित: BioMed Central 2014
विषय:
Open Debate
ऑनलाइन पहुंच:https://ncbi.nlm.nih.gov/pmc/articles/PMC3978420/
https://ncbi.nlm.nih.gov/pubmed/24713084
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/gm527
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