Informed Consent in Genome-Scale Research: What Do Prospective Participants Think?

BACKGROUND: To promote effective genome-scale research, genomic and clinical data for large population samples must be collected, stored, and shared. METHODS: We conducted focus groups with 45 members of a Seattle-based integrated healthcare delivery system to learn about their views and expectation...

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Bibliografiske detaljer
Main Authors: Trinidad, Susan Brown, Fullerton, Stephanie M., Bares, Julie M., Jarvik, Gail P., Larson, Eric B., Burke, Wylie
Format: Artigo
Sprog:Inglês
Udgivet: 2012
Fag:
Article
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC3593675/
https://ncbi.nlm.nih.gov/pubmed/23493836
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1080/21507716.2012.662575
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