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Return of Incidental Findings in Genomic Medicine: Measuring What Patients Value: Development of an Instrument to Measure PReferences for Information from Next-generation Testing (IMPRINT)

PURPOSE: Little is known about factors that influence patients’ preferences for the return of incidental findings from genome sequencing. This study identified attributes of incidental findings that were important to patients and developed a discrete choice experiment (DCE) instrument to quantify pa...

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Detalhes bibliográficos
Main Authors: Bennette, Caroline Savage, Trinidad, Susan Brown, Fullerton, Stephanie M., Patrick, Donald, Amendola, Laura, Burke, Wylie, Hisama, Fuki M., Jarvik, Gail P., Regier, Dean A., Veenstra, David L.
Formato: Artigo
Idioma:Inglês
Publicado em: 2013
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC3823641/
https://ncbi.nlm.nih.gov/pubmed/23722871
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1038/gim.2013.63
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