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Balancing the Risks and Benefits of Genomic Data Sharing: Genome Research Participants’ Perspectives

BACKGROUND: Technological advancements are rapidly propelling the field of genome research forward, while lawmakers attempt to keep apace with the risks these advances bear. Balancing normative concerns of maximizing data utility and protecting human subjects, whose privacy is at risk due to the ide...

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Autori principali: Oliver, J.M., Slashinski, M.J., Wang, T., Kelly, P.A., Hilsenbeck, S.G., McGuire, A.L.
Natura: Artigo
Lingua:Inglês
Pubblicazione: S. Karger AG 2012
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Accesso online:https://ncbi.nlm.nih.gov/pmc/articles/PMC3318928/
https://ncbi.nlm.nih.gov/pubmed/22213783
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1159/000334718
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