Sensitivity of alternative measures of functioning and wellbeing for adults with sickle cell disease: comparison of PROMIS® to ASCQ-Me℠

nork Keller, San, Yang, Manshu, Treadwell, Marsha J., Hassell, Kathryn L.
Argitaratua izan da Health Qual Life Outcomes (2017)

CDC Grand Rounds: Improving the Lives of Persons with Sickle Cell Disease

nork Hulihan, Mary, Hassell, Kathryn L., Raphael, Jean L., Smith-Whitley, Kim, Thorpe, Phoebe
Argitaratua izan da MMWR Morb Mortal Wkly Rep (2017)

Patient reports of health outcome for adults living with sickle cell disease: development and testing of the ASCQ-Me item banks

nork Keller, San D, Yang, Manshu, Treadwell, Marsha J, Werner, Ellen M, Hassell, Kathryn L
Argitaratua izan da Health Qual Life Outcomes (2014)

Health Status of Sand Flathead (Platycephalus bassensis), Inhabiting an Industrialised and Urbanised Embayment, Port Phillip Bay, Victoria as Measured by Biomarkers of Exposure and...

nork Baker, Jarrad K., Long, Sara M., Hassell, Kathryn L., Pettigrove, Vincent J., Gagnon, Marthe M.
Argitaratua izan da PLoS One (2016)

Transition to adulthood and adult health care for patients with sickle cell disease or cystic fibrosis: Current practices and research priorities

nork Lanzkron, Sophie, Sawicki, Gregory S., Hassell, Kathryn L., Konstan, Michael W., Liem, Robert I., McColley, Susanna A.
Argitaratua izan da J Clin Transl Sci (2019)

Quality of care in sickle cell disease: Cross-sectional study and development of a measure for adults reporting on ambulatory and emergency department care

nork Evensen, Christian T., Treadwell, Marsha J., Keller, San, Levine, Roger, Hassell, Kathryn L., Werner, Ellen M., Smith, Wally R.
Argitaratua izan da Medicine (Baltimore) (2016)

Standard measures for sickle cell disease research: the PhenX Toolkit sickle cell disease collections

nork Eckman, James R., Hassell, Kathryn L., Huggins, Wayne, Werner, Ellen M., Klings, Elizabeth S., Adams, Robert J., Panepinto, Julie A., Hamilton, Carol M.
Argitaratua izan da Blood Adv (2017)

LEG ULCERS IN SICKLE CELL DISEASE: CURRENT PATTERNS AND PRACTICES

nork Delaney, Kara-Marie H., Axelrod, Karen C., Buscetta, Ashley, Hassell, Kathryn L., Adams-Graves, Patricia E., Seamon, Catherine, Kato, Gregory J., Minniti, Caterina P.
Argitaratua 2013

Indications and Results of Human Leukocyte Antigen-identical Sibling Hematopoietic Cell Transplantation for Sickle Cell Disease

nork Walters, Mark C., De Castro, Laura M., Sullivan, Keith M., Krishnamurti, Lakshmanan, Kamani, Naynesh, Bredeson, Christopher, Neuberg, Donna, Hassell, Kathryn L., Farnia, Stephanie, Campbell, Andrew, Petersdorf, Effie
Argitaratua izan da Biol Blood Marrow Transplant (2015)

Metabolomics Provide Sensitive Insights into the Impacts of Low Level Environmental Contamination on Fish Health—A Pilot Study

nork Long, Sara M., Tull, Dedreia L., De Souza, David P., Kouremenos, Konstantinos A., Dayalan, Saravanan, McConville, Malcolm J., Hassell, Kathryn L., Pettigrove, Vincent J., Gagnon, Marthe Monique
Argitaratua izan da Metabolites (2020)

Clinical Outcomes Associated With Sickle Cell Trait: A Systematic Review

nork Naik, Rakhi P., Smith-Whitley, Kim, Hassell, Kathryn L., Umeh, Nkeiruka I., de Montalembert, Mariane, Sahota, Puneet, Haywood, Carlton, Jenkins, Jean, Lloyd-Puryear, Michele A., Joiner, Clinton H., Bonham, Vence L., Kato, Gregory J.
Argitaratua izan da Ann Intern Med (2018)

A framework for assessing outcomes from newborn screening: on the road to measuring its promise

nork Hinton, Cynthia F., Homer, Charles J., Thompson, Alexis A., Williams, Andrea, Hassell, Kathryn L., Feuchtbaum, Lisa, Berry, Susan A., Comeau, Anne Marie, Therrell, Bradford L., Brower, Amy, Harris, Katharine B., Brown, Christine, Monaco, Jana, Ostrander, Robert J., Zuckerman, Alan E., Kaye, Celia, Dougherty, Denise, Greene, Carol, Green, Nancy S.
Argitaratua izan da Mol Genet Metab (2016)

Bone Marrow Transplantation for Adolescents and Young Adults with Sickle Cell Disease: Results of a Prospective Multicenter Pilot Study

nork Krishnamurti, Lakshmanan, Neuberg, Donna S., Sullivan, Keith M., Kamani, Naynesh R., Abraham, Allistair, Campigotto, Federico, Zhang, Wandi, Dahdoul, Thabat, De Castro, Laura, Parikh, Suhag, Bakshi, Nitya, Haight, Ann, Hassell, Kathryn L., Loving, Rebekah, Rosenthal, Joseph, Smith, Shannon L., Smith, Wally, Spearman, Marcus, Stevenson, Kristen, Wu, Catherine J, Wiedl, Christina, Waller, Edmund K, Walters, Mark C.
Argitaratua izan da Am J Hematol (2019)

Echocardiographic Markers of Elevated Pulmonary Pressure and Left Ventricular Diastolic Dysfunction are Associated with Exercise Intolerance in Adults and Adolescents with Homozygo...

nork Sachdev, Vandana, Kato, Gregory J., Gibbs, J. Simon R., Barst, Robyn J., Machado, Roberto F., Nouraie, Mehdi, Hassell, Kathryn L., Little, Jane A., Schraufnagel, Dean E., Krishnamurti, Lakshmanan, Girgis, Reda E., Morris, Claudia R., Rosenzweig, Erika Berman, Badesch, David B., Lanzkron, Sophie, Castro, Oswaldo L., Taylor, James G., Hannoush, Hwaida, Goldsmith, Jonathan C., Gladwin, Mark T., Gordeuk, Victor R.
Argitaratua 2011

Hospitalization for pain in patients with sickle cell disease treated with sildenafil for elevated TRV and low exercise capacity

nork Machado, Roberto F., Barst, Robyn J., Yovetich, Nancy A., Hassell, Kathryn L., Kato, Gregory J., Gordeuk, Victor R., Gibbs, J. Simon R., Little, Jane A., Schraufnagel, Dean E., Krishnamurti, Lakshmanan, Girgis, Reda E., Morris, Claudia R., Rosenzweig, Erika B., Badesch, David B., Lanzkron, Sophie, Onyekwere, Onyinye, Castro, Oswaldo L., Sachdev, Vandana, Waclawiw, Myron A., Woolson, Rob, Goldsmith, Jonathan C., Gladwin, Mark T.
Argitaratua 2011

Risk Factors for Death in 632 Patients with Sickle Cell Disease in the United States and United Kingdom

nork Gladwin, Mark T., Barst, Robyn J., Gibbs, J. Simon R., Hildesheim, Mariana, Sachdev, Vandana, Nouraie, Mehdi, Hassell, Kathryn L., Little, Jane A., Schraufnagel, Dean E., Krishnamurti, Lakshmanan, Novelli, Enrico, Girgis, Reda E., Morris, Claudia R., Berman Rosenzweig, Erika, Badesch, David B., Lanzkron, Sophie, Castro, Oswaldo L., Taylor, James G., Goldsmith, Jonathan C., Kato, Gregory J., Gordeuk, Victor R., Machado, Roberto F.
Argitaratua 2014

The relationship between the severity of hemolysis, clinical manifestations and risk of death in 415 patients with sickle cell anemia in the US and Europe

nork Nouraie, Mehdi, Lee, Janet S., Zhang, Yingze, Kanias, Tamir, Zhao, Xuejun, Xiong, Zeyu, Oriss, Timothy B., Zeng, Qilu, Kato, Gregory J., Gibbs, J. Simon R., Hildesheim, Mariana E., Sachdev, Vandana, Barst, Robyn J., Machado, Roberto F., Hassell, Kathryn L., Little, Jane A., Schraufnagel, Dean E., Krishnamurti, Lakshmanan, Novelli, Enrico, Girgis, Reda E., Morris, Claudia R., Rosenzweig, Erika Berman, Badesch, David B., Lanzkron, Sophie, Castro, Oswaldo L., Goldsmith, Jonathan C., Gordeuk, Victor R., Gladwin, Mark T.
Argitaratua 2013