Sensitivity of alternative measures of functioning and wellbeing for adults with sickle cell disease: comparison of PROMIS® to ASCQ-Me℠

Por Keller, San, Yang, Manshu, Treadwell, Marsha J., Hassell, Kathryn L.
Publicado no Health Qual Life Outcomes (2017)

CDC Grand Rounds: Improving the Lives of Persons with Sickle Cell Disease

Por Hulihan, Mary, Hassell, Kathryn L., Raphael, Jean L., Smith-Whitley, Kim, Thorpe, Phoebe
Publicado no MMWR Morb Mortal Wkly Rep (2017)

Patient reports of health outcome for adults living with sickle cell disease: development and testing of the ASCQ-Me item banks

Por Keller, San D, Yang, Manshu, Treadwell, Marsha J, Werner, Ellen M, Hassell, Kathryn L
Publicado no Health Qual Life Outcomes (2014)

Health Status of Sand Flathead (Platycephalus bassensis), Inhabiting an Industrialised and Urbanised Embayment, Port Phillip Bay, Victoria as Measured by Biomarkers of Exposure and...

Por Baker, Jarrad K., Long, Sara M., Hassell, Kathryn L., Pettigrove, Vincent J., Gagnon, Marthe M.
Publicado no PLoS One (2016)

Quality of care in sickle cell disease: Cross-sectional study and development of a measure for adults reporting on ambulatory and emergency department care

Por Evensen, Christian T., Treadwell, Marsha J., Keller, San, Levine, Roger, Hassell, Kathryn L., Werner, Ellen M., Smith, Wally R.
Publicado no Medicine (Baltimore) (2016)

Standard measures for sickle cell disease research: the PhenX Toolkit sickle cell disease collections

Por Eckman, James R., Hassell, Kathryn L., Huggins, Wayne, Werner, Ellen M., Klings, Elizabeth S., Adams, Robert J., Panepinto, Julie A., Hamilton, Carol M.
Publicado no Blood Adv (2017)

LEG ULCERS IN SICKLE CELL DISEASE: CURRENT PATTERNS AND PRACTICES

Por Delaney, Kara-Marie H., Axelrod, Karen C., Buscetta, Ashley, Hassell, Kathryn L., Adams-Graves, Patricia E., Seamon, Catherine, Kato, Gregory J., Minniti, Caterina P.
Publicado em 2013

Indications and Results of Human Leukocyte Antigen-identical Sibling Hematopoietic Cell Transplantation for Sickle Cell Disease

Por Walters, Mark C., De Castro, Laura M., Sullivan, Keith M., Krishnamurti, Lakshmanan, Kamani, Naynesh, Bredeson, Christopher, Neuberg, Donna, Hassell, Kathryn L., Farnia, Stephanie, Campbell, Andrew, Petersdorf, Effie
Publicado no Biol Blood Marrow Transplant (2015)

A framework for assessing outcomes from newborn screening: on the road to measuring its promise

Por Hinton, Cynthia F., Homer, Charles J., Thompson, Alexis A., Williams, Andrea, Hassell, Kathryn L., Feuchtbaum, Lisa, Berry, Susan A., Comeau, Anne Marie, Therrell, Bradford L., Brower, Amy, Harris, Katharine B., Brown, Christine, Monaco, Jana, Ostrander, Robert J., Zuckerman, Alan E., Kaye, Celia, Dougherty, Denise, Greene, Carol, Green, Nancy S.
Publicado no Mol Genet Metab (2016)

Echocardiographic Markers of Elevated Pulmonary Pressure and Left Ventricular Diastolic Dysfunction are Associated with Exercise Intolerance in Adults and Adolescents with Homozygo...

Por Sachdev, Vandana, Kato, Gregory J., Gibbs, J. Simon R., Barst, Robyn J., Machado, Roberto F., Nouraie, Mehdi, Hassell, Kathryn L., Little, Jane A., Schraufnagel, Dean E., Krishnamurti, Lakshmanan, Girgis, Reda E., Morris, Claudia R., Rosenzweig, Erika Berman, Badesch, David B., Lanzkron, Sophie, Castro, Oswaldo L., Taylor, James G., Hannoush, Hwaida, Goldsmith, Jonathan C., Gladwin, Mark T., Gordeuk, Victor R.
Publicado em 2011

Hospitalization for pain in patients with sickle cell disease treated with sildenafil for elevated TRV and low exercise capacity

Por Machado, Roberto F., Barst, Robyn J., Yovetich, Nancy A., Hassell, Kathryn L., Kato, Gregory J., Gordeuk, Victor R., Gibbs, J. Simon R., Little, Jane A., Schraufnagel, Dean E., Krishnamurti, Lakshmanan, Girgis, Reda E., Morris, Claudia R., Rosenzweig, Erika B., Badesch, David B., Lanzkron, Sophie, Onyekwere, Onyinye, Castro, Oswaldo L., Sachdev, Vandana, Waclawiw, Myron A., Woolson, Rob, Goldsmith, Jonathan C., Gladwin, Mark T.
Publicado em 2011

Risk Factors for Death in 632 Patients with Sickle Cell Disease in the United States and United Kingdom

Por Gladwin, Mark T., Barst, Robyn J., Gibbs, J. Simon R., Hildesheim, Mariana, Sachdev, Vandana, Nouraie, Mehdi, Hassell, Kathryn L., Little, Jane A., Schraufnagel, Dean E., Krishnamurti, Lakshmanan, Novelli, Enrico, Girgis, Reda E., Morris, Claudia R., Berman Rosenzweig, Erika, Badesch, David B., Lanzkron, Sophie, Castro, Oswaldo L., Taylor, James G., Goldsmith, Jonathan C., Kato, Gregory J., Gordeuk, Victor R., Machado, Roberto F.
Publicado em 2014

The relationship between the severity of hemolysis, clinical manifestations and risk of death in 415 patients with sickle cell anemia in the US and Europe

Por Nouraie, Mehdi, Lee, Janet S., Zhang, Yingze, Kanias, Tamir, Zhao, Xuejun, Xiong, Zeyu, Oriss, Timothy B., Zeng, Qilu, Kato, Gregory J., Gibbs, J. Simon R., Hildesheim, Mariana E., Sachdev, Vandana, Barst, Robyn J., Machado, Roberto F., Hassell, Kathryn L., Little, Jane A., Schraufnagel, Dean E., Krishnamurti, Lakshmanan, Novelli, Enrico, Girgis, Reda E., Morris, Claudia R., Rosenzweig, Erika Berman, Badesch, David B., Lanzkron, Sophie, Castro, Oswaldo L., Goldsmith, Jonathan C., Gordeuk, Victor R., Gladwin, Mark T.
Publicado em 2013