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Rare disease care pathways in the EU: from odysseys and labyrinths towards highways

Care pathways (CPW) are used worldwide to structure care processes within the patient-centered care concept. Rare diseases (RD), defined as those affecting less than 5 persons per 10,000 and including up to 10,000 different diseases, present unique challenges to CPW development due to their rarity a...

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Detalhes bibliográficos
Publicado no:J Community Genet
Main Authors: Tumiene, Birute, Graessner, Holm
Formato: Artigo
Idioma:Inglês
Publicado em: Springer Berlin Heidelberg 2021
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC8141079/
https://ncbi.nlm.nih.gov/pubmed/33738760
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s12687-021-00520-9
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