Research priorities for rare neurological diseases: a representative view of patient representatives and healthcare professionals from the European Reference Network for Rare Neurological Diseases

BACKGROUND: Patient involvement in research increases the impact of research and the likelihood of adoption in clinical practice. A first step is to know which research themes are important for patients. We distributed a survey on research priorities to ERN-RND members, both patient representatives...

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Detalhes bibliográficos
Publicado no:Orphanet J Rare Dis
Main Authors: Post, Annemarie E. M., Klockgether, Thomas, Landwehrmeyer, G. Bernhard, Pandolfo, Massimo, Arnesen, Astri, Reinhard, Carola, Graessner, Holm
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2021
Assuntos:
Research
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC7976714/
https://ncbi.nlm.nih.gov/pubmed/33736655
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s13023-020-01641-z
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