Učitavanje...
Rare disease care pathways in the EU: from odysseys and labyrinths towards highways
Care pathways (CPW) are used worldwide to structure care processes within the patient-centered care concept. Rare diseases (RD), defined as those affecting less than 5 persons per 10,000 and including up to 10,000 different diseases, present unique challenges to CPW development due to their rarity a...
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| Izdano u: | J Community Genet |
|---|---|
| Glavni autori: | , |
| Format: | Artigo |
| Jezik: | Inglês |
| Izdano: |
Springer Berlin Heidelberg
2021
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| Teme: | |
| Online pristup: | https://ncbi.nlm.nih.gov/pmc/articles/PMC8141079/ https://ncbi.nlm.nih.gov/pubmed/33738760 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s12687-021-00520-9 |
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