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Being the Pillar for Children with Rare Diseases—A Systematic Review on Parental Quality of Life
Parents caring for children with rare diseases fear the long-term progression of the child’s disease. The current study aims to systematically investigate the quality of life (QoL) in parents of children with different rare diseases. We performed a systematic literature search including quantitative...
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| Publicado no: | Int J Environ Res Public Health |
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| Principais autores: | , , , |
| Formato: | Artigo |
| Idioma: | Inglês |
| Publicado em: |
MDPI
2021
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| Assuntos: | |
| Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC8125857/ https://ncbi.nlm.nih.gov/pubmed/34066738 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.3390/ijerph18094993 |
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