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Being the Pillar for Children with Rare Diseases—A Systematic Review on Parental Quality of Life

Parents caring for children with rare diseases fear the long-term progression of the child’s disease. The current study aims to systematically investigate the quality of life (QoL) in parents of children with different rare diseases. We performed a systematic literature search including quantitative...

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Detaylı Bibliyografya
Yayımlandı:Int J Environ Res Public Health
Asıl Yazarlar: Boettcher, Johannes, Boettcher, Michael, Wiegand-Grefe, Silke, Zapf, Holger
Materyal Türü: Artigo
Dil:Inglês
Baskı/Yayın Bilgisi: MDPI 2021
Konular:
Online Erişim:https://ncbi.nlm.nih.gov/pmc/articles/PMC8125857/
https://ncbi.nlm.nih.gov/pubmed/34066738
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.3390/ijerph18094993
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