The Family Stress Model in families of children with rare diseases: a cross-sectional multilevel path analysis for understanding family dynamics

Παρόμοια τεκμήρια

• Evaluation of two family-based intervention programs for children affected by rare disease and their families – research network (CARE-FAM-NET): study protocol for a rater-blinded, randomized, controlled, multicenter trial in a 2x2 factorial design
  ανά: Johannes Boettcher, κ.ά.
  Έκδοση: (2020-11-01)
• Being the Pillar for Children with Rare Diseases—A Systematic Review on Parental Quality of Life
  ανά: Boettcher, Johannes, κ.ά.
  Έκδοση: (2021)
• Quality of Life and Mental Health in Mothers and Fathers Caring for Children and Adolescents with Rare Diseases Requiring Long-Term Mechanical Ventilation
  ανά: Boettcher, Johannes, κ.ά.
  Έκδοση: (2020)
• Evaluation of two family-based intervention programs for children affected by rare disease and their families – research network (CARE-FAM-NET): study protocol for a rater-blinded, randomized, controlled, multicenter trial in a 2x2 factorial design
  ανά: Boettcher, Johannes, κ.ά.
  Έκδοση: (2020)
• The impact of long-term ventilator-use on health-related quality of life and the mental health of children with neuromuscular diseases and their families: need for a revised perspective?
  ανά: Johannsen, Jessika, κ.ά.
  Έκδοση: (2020)