The Michigan Retinal Degeneration Questionnaire: A Patient Reported Outcomes Instrument for Inherited Retinal Degenerations

PURPOSE: Create a psychometrically validated patient-reported outcomes measure for inherited retinal degenerations. DESIGN: Qualitative and quantitative patient-reported outcomes questionnaire development using Item Response Theory validation. METHODS: One-hundred twenty-eight patients with a diagno...

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Udgivet i:Am J Ophthalmol
Main Authors: Lacy, Gabrielle D., Abalem, Maria Fernanda, Andrews, Chris A., Popova, Lilia T., Santos, Erin P., Yu, Gina, Rakine, Hanan Y., Baig, Natasha, Ehrlich, Joshua R., Fahim, Abigail T., Branham, Kari H., Stelmack, Joan A., Swenor, Bonnielin K., Dagnelie, Gislin, Musch, David C., Jayasundera, K. Thiran
Format: Artigo
Sprog:Inglês
Udgivet: 2020
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Article
Online adgang:https://ncbi.nlm.nih.gov/pmc/articles/PMC7907279/
https://ncbi.nlm.nih.gov/pubmed/32858027
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.ajo.2020.08.032
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