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Patient-reported outcome measures in inherited retinal degeneration gene therapy trials

Patient-reported outcome (PRO) measures have the potential to uniquely capture patient experience and serve as an outcome measure in inherited retinal degeneration (IRD) gene therapy trials. An IRD-specific patient-reported outcome measure may yield valuable information that has not been obtained fr...

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Detalhes bibliográficos
Publicado no:Ophthalmic Genet
Main Authors: Lacy, Gabrielle D., Abalem, Maria Fernanda, Musch, David C., Jayasundera, Kanishka T.
Formato: Artigo
Idioma:Inglês
Publicado em: 2020
Assuntos:
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC7110960/
https://ncbi.nlm.nih.gov/pubmed/32100594
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1080/13816810.2020.1731836
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