The Michigan Retinal Degeneration Questionnaire: A Patient Reported Outcomes Instrument for Inherited Retinal Degenerations

PURPOSE: Create a psychometrically validated patient-reported outcomes measure for inherited retinal degenerations. DESIGN: Qualitative and quantitative patient-reported outcomes questionnaire development using Item Response Theory validation. METHODS: One-hundred twenty-eight patients with a diagno...

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Pubblicato in:Am J Ophthalmol
Autori principali: Lacy, Gabrielle D., Abalem, Maria Fernanda, Andrews, Chris A., Popova, Lilia T., Santos, Erin P., Yu, Gina, Rakine, Hanan Y., Baig, Natasha, Ehrlich, Joshua R., Fahim, Abigail T., Branham, Kari H., Stelmack, Joan A., Swenor, Bonnielin K., Dagnelie, Gislin, Musch, David C., Jayasundera, K. Thiran
Natura: Artigo
Lingua:Inglês
Pubblicazione: 2020
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Article
Accesso online:https://ncbi.nlm.nih.gov/pmc/articles/PMC7907279/
https://ncbi.nlm.nih.gov/pubmed/32858027
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1016/j.ajo.2020.08.032
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