The Cure SMA Membership Surveys: Highlights of Key Demographic and Clinical Characteristics of Individuals with Spinal Muscular Atrophy

BACKGROUND: Cure SMA maintains the largest patient-reported database for people affected with spinal muscular atrophy (SMA). In 2017, Cure SMA initiated annual surveys with their membership to collect demographic and disease characteristics, healthcare, and burden of disease information from patient...

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Detalhes bibliográficos
Publicado no:J Neuromuscul Dis
Main Authors: Belter, Lisa, Jarecki, Jill, Reyna, Sandra P., Cruz, Rosangel, Jones, Cynthia C., Schroth, Mary, O’Toole, Colleen McCarthy, O’Brien, Shannon, Hall, Susan A., Johnson, Nicole B., Paradis, Angela D.
Formato: Artigo
Idioma:Inglês
Publicado em: IOS Press 2021
Assuntos:
Research Report
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC7902958/
https://ncbi.nlm.nih.gov/pubmed/33104036
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.3233/JND-200563
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