Quality of life data for individuals affected by spinal muscular atrophy: a baseline dataset from the Cure SMA Community Update Survey

Por Belter, Lisa, Cruz, Rosángel, Jarecki, Jill
Publicado no Orphanet J Rare Dis (2020)

“I have SMA, SMA doesn’t have me”: a qualitative snapshot into the challenges, successes, and quality of life of adolescents and young adults with SMA

Por Mazzella, Allison, Curry, Mary, Belter, Lisa, Cruz, Rosángel, Jarecki, Jill
Publicado no Orphanet J Rare Dis (2021)

Awareness screening and referral patterns among pediatricians in the United States related to early clinical features of spinal muscular atrophy (SMA)

Por Curry, Mary, Cruz, Rosángel, Belter, Lisa, Schroth, Mary, Lenz, Megan, Jarecki, Jill
Publicado no BMC Pediatr (2021)

Economic burden of spinal muscular atrophy: an analysis of claims data

Por Belter, Lisa, Cruz, Rosángel, Kulas, Sierra, McGinnis, Emily, Dabbous, Omar, Jarecki, Jill
Publicado no J Mark Access Health Policy (2020)

The availability, functionality, and quality of mobile applications supporting medication self-management

Por Bailey, Stacy Cooper, Belter, Lisa T, Pandit, Anjali U, Carpenter, Delesha M, Carlos, Eamon, Wolf, Michael S
Publicado em 2014

An overview of the Cure SMA membership database: Highlights of key demographic and clinical characteristics of SMA members

Por Belter, Lisa, Cook, Suzanne F., Crawford, Thomas O., Jarecki, Jill, Jones, Cynthia C., Kissel, John T., Schroth, Mary, Hobby, Kenneth
Publicado no J Neuromuscul Dis (2018)

Spinal Muscular Atrophy (SMA) Subtype Concordance in Siblings: Findings From the Cure SMA Cohort

Por Jones, Cynthia C., Cook, Suzanne F., Jarecki, Jill, Belter, Lisa, Reyna, Sandra P., Staropoli, John, Farwell, Wildon, Hobby, Kenneth
Publicado no J Neuromuscul Dis (2020)

The Cure SMA Membership Surveys: Highlights of Key Demographic and Clinical Characteristics of Individuals with Spinal Muscular Atrophy

Por Belter, Lisa, Jarecki, Jill, Reyna, Sandra P., Cruz, Rosangel, Jones, Cynthia C., Schroth, Mary, O’Toole, Colleen McCarthy, O’Brien, Shannon, Hall, Susan A., Johnson, Nicole B., Paradis, Angela D.
Publicado no J Neuromuscul Dis (2021)