The Cure SMA Membership Surveys: Highlights of Key Demographic and Clinical Characteristics of Individuals with Spinal Muscular Atrophy

BACKGROUND: Cure SMA maintains the largest patient-reported database for people affected with spinal muscular atrophy (SMA). In 2017, Cure SMA initiated annual surveys with their membership to collect demographic and disease characteristics, healthcare, and burden of disease information from patient...

Disgrifiad llawn

Wedi'i Gadw mewn:
Manylion Llyfryddiaeth
Cyhoeddwyd yn:J Neuromuscul Dis
Prif Awduron: Belter, Lisa, Jarecki, Jill, Reyna, Sandra P., Cruz, Rosangel, Jones, Cynthia C., Schroth, Mary, O’Toole, Colleen McCarthy, O’Brien, Shannon, Hall, Susan A., Johnson, Nicole B., Paradis, Angela D.
Fformat: Artigo
Iaith:Inglês
Cyhoeddwyd: IOS Press 2021
Pynciau:
Research Report
Mynediad Ar-lein:https://ncbi.nlm.nih.gov/pmc/articles/PMC7902958/
https://ncbi.nlm.nih.gov/pubmed/33104036
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.3233/JND-200563
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