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Assessing the impacts of having a child with achondroplasia on parent well-being

PURPOSE: This study’s purpose was to develop a better understanding of the experiences of parents of children with achondroplasia and to provide qualitative evidence to support the development of a patient-reported outcome (PRO) measure of parent impacts. METHODS: Concept elicitation (CE) individual...

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Foilsithe in:Qual Life Res
Main Authors: Pfeiffer, Kathryn M., Brod, Meryl, Smith, Alden, Gianettoni, Jill, Viuff, Dorthe, Ota, Sho, Charlton, R. Will
Formáid: Artigo
Teanga:Inglês
Foilsithe: Springer International Publishing 2020
Ábhair:
Rochtain Ar Líne:https://ncbi.nlm.nih.gov/pmc/articles/PMC7847864/
https://ncbi.nlm.nih.gov/pubmed/32803627
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s11136-020-02594-3
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