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Assessing the impacts of having a child with achondroplasia on parent well-being
PURPOSE: This study’s purpose was to develop a better understanding of the experiences of parents of children with achondroplasia and to provide qualitative evidence to support the development of a patient-reported outcome (PRO) measure of parent impacts. METHODS: Concept elicitation (CE) individual...
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| Publicado no: | Qual Life Res |
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| Main Authors: | , , , , , , |
| Formato: | Artigo |
| Idioma: | Inglês |
| Publicado em: |
Springer International Publishing
2020
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| Assuntos: | |
| Acesso em linha: | https://ncbi.nlm.nih.gov/pmc/articles/PMC7847864/ https://ncbi.nlm.nih.gov/pubmed/32803627 https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s11136-020-02594-3 |
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