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Assessing physical symptoms, daily functioning, and well‐being in children with achondroplasia

This study's purpose was to provide qualitative evidence to support the development of two observer‐reported outcome measures assessing the physical symptoms/complications of achondroplasia in children and impacts on children's quality of life. Individual/focus group concept elicitation in...

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Detalles Bibliográficos
Publicado en:Am J Med Genet A
Main Authors: Pfeiffer, Kathryn M., Brod, Meryl, Smith, Alden, Gianettoni, Jill, Viuff, Dorthe, Ota, Sho, Charlton, R. Will
Formato: Artigo
Idioma:Inglês
Publicado: John Wiley & Sons, Inc. 2020
Assuntos:
Acceso en liña:https://ncbi.nlm.nih.gov/pmc/articles/PMC7756853/
https://ncbi.nlm.nih.gov/pubmed/33084192
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1002/ajmg.a.61903
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