Parents’ Perspectives and Societal Acceptance of Implementation of Newborn Screening for SCID in the Netherlands

PURPOSE: While neonatal bloodspot screening (NBS) for severe combined immunodeficiency (SCID) has been introduced more than a decade ago, implementation in NBS programs remains challenging in many countries. Even if high-quality test methods and follow-up care are available, public uptake and parent...

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Publicado en:J Clin Immunol
Main Authors: Blom, Maartje, Bredius, Robbert G. M., Jansen, Marleen E., Weijman, Gert, Kemper, Evelien A., Vermont, Clementien L., Hollink, Iris H. I. M., Dik, Willem A., van Montfrans, Joris M., van Gijn, Mariëlle E., Henriet, Stefanie S., van Aerde, Koen J., Koole, Wouter, Lankester, Arjan C., Dekkers, Eugènie H. B. M., Schielen, Peter C. J. I., de Vries, Martine C., Henneman, Lidewij, van der Burg, Mirjam
Formato: Artigo
Idioma:Inglês
Publicado: Springer US 2020
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Original Article
Acceso en liña:https://ncbi.nlm.nih.gov/pmc/articles/PMC7846522/
https://ncbi.nlm.nih.gov/pubmed/33070266
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s10875-020-00886-4
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