Parents’ Perspectives and Societal Acceptance of Implementation of Newborn Screening for SCID in the Netherlands

PURPOSE: While neonatal bloodspot screening (NBS) for severe combined immunodeficiency (SCID) has been introduced more than a decade ago, implementation in NBS programs remains challenging in many countries. Even if high-quality test methods and follow-up care are available, public uptake and parent...

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Publicat a:J Clin Immunol
Autors principals: Blom, Maartje, Bredius, Robbert G. M., Jansen, Marleen E., Weijman, Gert, Kemper, Evelien A., Vermont, Clementien L., Hollink, Iris H. I. M., Dik, Willem A., van Montfrans, Joris M., van Gijn, Mariëlle E., Henriet, Stefanie S., van Aerde, Koen J., Koole, Wouter, Lankester, Arjan C., Dekkers, Eugènie H. B. M., Schielen, Peter C. J. I., de Vries, Martine C., Henneman, Lidewij, van der Burg, Mirjam
Format: Artigo
Idioma:Inglês
Publicat: Springer US 2020
Matèries:
Original Article
Accés en línia:https://ncbi.nlm.nih.gov/pmc/articles/PMC7846522/
https://ncbi.nlm.nih.gov/pubmed/33070266
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1007/s10875-020-00886-4
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