Gaining insight into the views of outpatients with Huntington’s disease regarding their future and the way they deal with their poor prognosis: a qualitative study

BACKGROUND: Huntington’s disease (HD) has a poor prognosis. Decision-making capacity and communication ability may become lost as the disease progresses. Therefore, HD patients are encouraged to engage in advance care planning (ACP). To improve ACP for HD patients, there is a need to better understa...

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Detaylı Bibliyografya
Yayımlandı:BMC Palliat Care
Asıl Yazarlar: Ekkel, Marina R., Depla, Marja F. I. A., Verschuur, Els M. L., Veenhuizen, Ruth B., Hertogh, Cees M. P. M., Onwuteaka-Philipsen, Bregje D.
Materyal Türü: Artigo
Dil:Inglês
Baskı/Yayın Bilgisi: BioMed Central 2021
Konular:
Research Article
Online Erişim:https://ncbi.nlm.nih.gov/pmc/articles/PMC7802313/
https://ncbi.nlm.nih.gov/pubmed/33435952
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12904-020-00706-x
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