Gaining insight into the views of outpatients with Huntington’s disease regarding their future and the way they deal with their poor prognosis: a qualitative study

BACKGROUND: Huntington’s disease (HD) has a poor prognosis. Decision-making capacity and communication ability may become lost as the disease progresses. Therefore, HD patients are encouraged to engage in advance care planning (ACP). To improve ACP for HD patients, there is a need to better understa...

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Detalhes bibliográficos
Publicado no:BMC Palliat Care
Main Authors: Ekkel, Marina R., Depla, Marja F. I. A., Verschuur, Els M. L., Veenhuizen, Ruth B., Hertogh, Cees M. P. M., Onwuteaka-Philipsen, Bregje D.
Formato: Artigo
Idioma:Inglês
Publicado em: BioMed Central 2021
Assuntos:
Research Article
Acesso em linha:https://ncbi.nlm.nih.gov/pmc/articles/PMC7802313/
https://ncbi.nlm.nih.gov/pubmed/33435952
https://ncbi.nlm.nih.govhttp://dx.doi.org/10.1186/s12904-020-00706-x
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